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 | New website Goes Live 14th June 2010 |
 figlash writes "That's right ladies, after months of the committee hinting and talking about the new website, we have decided on a Go Live date:
Monday 14th June 2010
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Posted by admin on Friday, May 07 @ 10:28:31 EST (268 reads)
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| New Study: POLYCYSTIC OVARY SYNDROME AND CARDIOVASCULAR RISK |
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Dr Alicia Chan is a Cardiologist at The Queen Elizabeth Hospital and is currently running a study looking at link between PCOS and heart disease.
The hospital have had a recent publication in an international journal (see attached) on this subject. It is the first study in this area to suggest PCOS per se independent of presence of obesity or insulin resistance/diabetes may be an independent risk factor for heart disease.
As their study only involved very strictly selected individuals form a young age group, they are now doing a larger trial on women age between 20-60 years of age.
They are halfway through study but am looking for 40 more PCOS subjects and controls to participate, specifically ages between 20-30 and 40-60.
It involves a one off two hour visit to The Queen Elizabeth Hospital.
More details can be found here.
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Posted by admin on Sunday, November 22 @ 23:11:58 EST (676 reads)
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| Do you have questions about PCOS or POSAA - Phone us directly on Wednesday's |
POSAA are happy to announce that we now have an office space, and are able to take your calls in person. If you have a question about PCOS or POSAA, you can call us
on (02) 8850 9429
Wednesdays only
From the POSAA Committee
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Posted by charmaine on Wednesday, October 07 @ 11:18:14 EST (770 reads)
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| *PCOS Support Group Welcomes New Alliance* |
v writes "The formation of the PCOS Alliance and decision to fund it by the Federal Government, have been welcomed by Australia's only support group for women with Polycystic Ovarian Syndrome, POSAA Inc.
For more than four years POSAA - the Polycystic Ovarian Syndrome Association of Australia Inc - has led a campaign for national guidelines on diagnosing PCOS and managing the syndrome.
PCOS affects about one in ten Australian women of child-bearing age. It is the leading cause of female infertility and women with the syndrome are at much higher risk of diabetes and heart disease by their mid 40s, than other women. Many women with PCOS symptoms are unaware that they could be at risk of serious long-term complications.
"The tragedy is these complications are preventable, yet as PCOS is under-recognised and a poorly understood condition opportunities for prevention are lost," said Veryan McAllister, the president of POSAA Inc.
"We're delighted that the country's best researchers and PCOS specialists have decided to form one group, to devise national guidelines on diagnosing the syndrome and treating it," said Mrs McAllister.
"The association is also pleased to be part of the alliance, we believe that it's essential that PCOS women have input into devising these guidelines.
"Diagnosing the syndrome can be difficult, for some women it takes too long and too many visits to doctors to get a diagnosis for this," said Mrs McAllister.
The association believes devising a set of guidelines on diagnosing and managing the disease will lead to a better understanding among doctors and the wider community about this serious condition.
Symptoms include; periods that are irregular or heavy, difficulty in becoming pregnant, weight gain - especially around the tummy area, excess facial or body hair, acne on the face and body, pre-Diabetes or Diabetes.
For more information or interviews with women who have PCOS: please contact Veryan McAllister on 0448 752 516
For more information about PCOS, please visit: www.posaa.asn.au
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Posted by charmaine on Monday, September 07 @ 09:58:24 EST (789 reads)
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| POSAA Forum changes |
Hello POSAA Forum Members,
As many forum members may be aware, the POSAA website and associated forum has had a few security concerns over the past few months. In particular, due to its very nature, the forum has had an increasing number of spammers and, sad to say, stalkers. The posts generated by these have caused distress to members and are of great concern to the POSAA Committee.
At recent brainstorming workshops that have been held in NSW and Victoria, suggestions have been made to the committee on how to handle these occurrences. A popular suggestion has been to restrict the forum to Financial Members only, the reasoning being spammers and stalkers alike are unlikely to want to pay an annual fee just for the opportunity to post.
After much discussion and investigation into other possible solutions, the committee have decided to go ahead with this idea. The POSAA forum has always been an important place of support for many cysters and the committee takes the safety and security of all its members most seriously. It is important that we can all post and share our journeys in a safe and welcoming environment. With the forum as it is, if you google search your user name, your profile can be accessed and then things you have written can be read. Taking this step to restrict to Financial Members will help ensure that your privacy and personal information is kept secure.
The committee is aware that not all forum members have yet signed up to be Financial Members – to ensure that everyone has ample opportunity, the change will not occur until Saturday 22nd August 2009. This allows 6 weeks for everyone to sign up. We will be posting reminders here on the forum and via email to ensure no one is left behind
The POSAA website itself will still be freely available to all public – after all, POSAA is here to provide important information to all cysters
It is only the Forum that will be restricted to Financial Members only.
After 22nd August, you will start to see other exciting changes – new forum status levels and a new look website are all in the pipe work in the coming months!
If you are an existing Financial Member, you do not need to do anything prior to the 22nd August. If you are not yet a Financial Member, you can sign up here Join POSAA Now
POSAA is the leading Australian advocacy group for women with PCOS, so becoming a Financial Member means you will be apart of the exciting new changes for POSAA this year. On top of having access to the Forum, you also get our new look and highly informative quarterly newsletter, discount entry to the annual conference, free entry to support group meetings, and soon, a membership discount/loyalty card. Your membership with POSAA also goes a long way in making a difference to the lives of women with PCOS, with us getting one step closer to the National Guidelines.
If you have any questions regarding this decision, please either pm me or email the committee via my email veryan@posaa.asn.au
Kind Regards,
POSAA Committee
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Posted by charmaine on Thursday, July 09 @ 13:41:07 EST (441 reads)
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